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We don't have to battle NPC alone

Together We Are Stronger.

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You share messages to reach NPC patients. We connect them with the help they need.

Too often, we must blaze our own trail to healing after a child is diagnosed with Niemann-Pick C. By sharing resources with each other, we do not have to battle this disease alone.
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Essential Info

Educational Resources

Dementia in Children
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A guide for parents, teachers and care professionals for dealing with dementia in children with Niemann-Pick C

Education for NPC Kids
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Guidance for education providers of children with NPC

Firefly Fund
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Our mission is to fund and support the research and education necessary to accelerate a cure for Niemann-Pick C

NNPDF
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The official Facebook discussion group by the National Niemann-Pick Disease Foundation

NNPDF Handbook
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A helpful guide to help others when your child is facing an emergency

NPC Awareness Group
https://static.wehealth.co/media/images/2021/08/31/Screen_Shot_2021-08-31_at_6.46.55_PM.png

This is an open Facebook group for spreading Niemann-Pick C awareness

NPC Care Centers
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NNPDF has created a list of medical institutions with experience caring for and treating NPC

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